Director of Research and Development

Director of Research and Development Reporting to: Chief Executive Officer and Founder Salary range: On Request Location: Hybrid-working set up Head Office: Duchenne UK offices, Shepherd''s Bush, London Our work We are an ambitious, dynamic and impactful charity. Following their sons'' diagnosis of Duchenne muscular dystrophy (DMD), Emily Reuben and Alex Johnson founded Duchenne UK in 2012. DMD is a devastating progressive condition diagnosed in early childhood which causes all the muscles in the body to gradually weaken. There is currently no cure for DMD, so Emily and Alex set up Duchenne UK to change this. Since 2012, we have raised around £30 million to end the devastating impact of DMD. We fund ground-breaking scientific research to find effective treatments, developing a first-class clinical research infrastructure to deliver DMD clinical trials in the UK. We engage industry and regulators to accelerate access to treatments, developing innovative assistive technologies to transform the lives of people living with DMD. We are here to support every family affected and ensure that they receive the best possible care. We aim not only to improve quality of live but stop the disease in its tracks. We need to do this at pace, because this generation of patients can''t wait. Alex and Emily were awarded OBEs in The King''s Birthday Honours List in 2023 in recognition of their services to charity and to people living with DMD. They, and the dedicated and effective team they have
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